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Brothers for life
When Jeff Skinner needed a kidney transplant to stay alive, his brother David was there for him
BY DOLORES HAGGARTY
Winnipeg Health Region
Wave, March / April 2010
The acting students are rolling through their lines when teacher
Jeff Skinner stops them cold.
"I can see we're a little rusty," barks Jeff, a cherubic man in his
mid-50s. "Your characters aren't believable. Come on, let's get
body, thoughts and words all together."
The students give it another go, hoping to pass muster and
coax a compliment from the taskmaster at the head of the class.
It won't be an easy thing to do. Even Jeff acknowledges he is
feeling more obnoxious than usual as he promises to make the
lives of his would-be actors "a living hell!"
But the students don't mind. They're just happy to see him.
After all, it was only a few months ago that they learned their
beloved mentor might not be standing before them on this January
evening. In fact, there was a good chance he might not be
standing anywhere.
That's because last fall Jeff was suffering from chronic kidney
disease, a condition that left him in need of daily dialysis treatment
simply to stay alive. The prognosis was not good - without
a kidney transplant, most people with chronic kidney disease
eventually die from complications such as cardiovascular disease.
Fortunately, Jeff was able to get a transplant, thanks to his
brother, David Skinner, who became a living kidney donor. Now,
in early January, just six weeks after the transplant operation, Jeff
is up and around, teaching acting classes and tending to business
at Two Lagoons, a film production company he founded with
Kent Ulrich in 2008.
It's a dramatic turnaround for Jeff, and one that is not lost on
his students.
"He used to have yellow pasty cheeks," says one during a
break in the class. "Tonight he has rosy little cheeks and bright
eyes," she adds.
"His voice is strong, no coughing," offers another.
"Before, we watched him deteriorate before our eyes - as
though someone pulled a plug. He was fuzzy-brained and
couldn't concentrate. Now he looks and acts 15 years younger."
Yes, to paraphrase a famous line from an old movie, Jeff Skinner
is back, and he has a story to tell. It's a tale of how one man
stepped out from the shadows of a potentially fatal disease to
find comfort in friends, family and work. It's also a story of how health-care providers - nurses, doctors, technicians and others -
worked together to help Jeff along on his journey. But, ultimately,
this story is about brothers - two men never all that close as kids
(they were born eight years apart) - but who are now true brothers
for life.
Chronic Kidney Disease
Kidneys are arguably the most under-appreciated of the human
organs. And yet without these two organs on either side of
our abdomen, each the size of a fist and shaped like a bean, we
would have no means of removing waste and toxins from our
body. In other words, without them, we would be dead.
Like many people, Jeff knew a bit about kidneys and their importance
to the body's overall function when he walked into his
doctor's office 12 years ago, in 1998. His mother, Evelyn Skinner,
now 88 years old, lost a kidney when she was 40 because of
arterial problems; and her mother, Jeff's maternal grandmother,
had one removed because of kidney stones.
At the time, Jeff had been passing kidney stones - a relatively
common condition that occurs when the urine has, for example,
too much calcium or uric acid - so he was expecting to hear that
he would have to undergo some kind of treatment or take some
steps to deal with the problem. What he did not expect to hear
was that he had a more serious kidney problem. Further exploration
revealed many cysts on both kidneys (unlike a few cysts
that are most often found in people over 50 years of age and not
considered serious).
The diagnosis was polycystic kidney disease. The prognosis?
Bleak. Over time, as the cysts multiplied, the kidneys would
enlarge and cease to function.
With that diagnosis, Jeff joined a growing number of Manitobans
who have some form of kidney disease. In fact, Manitoba
has the highest rate of chronic kidney disease in Canada, according
to the Manitoba Renal Program. Each year, more than 275
Manitobans start chronic dialysis treatment to stay alive, according
to program officials. Most of these cases - as many as 60 per
cent - are caused by diabetes. Cystic diseases, like the kind that
struck Jeff, account for less than five per cent of cases. Based on
world-wide population studies, it is estimated that as many as
100,000 Manitobans may be affected by chronic kidney disease
in different stages.
So serious is the problem, that the Winnipeg Health Region
and the Manitoba Renal Program have launched a campaign
to raise awareness about the issue. Dr. Mauro Verrelli, Medical
Director of the Manitoba Renal Program, says other measures
are also being considered to help stem the rise in chronic kidney disease cases. They include using new tests
to screen for early signs of kidney disease,
more education and support for family
doctors, and making more of an effort to
identify higher risk patients for testing,
especially those in remote Aboriginal communities
in northern Manitoba.
But no matter how one develops chronic kidney disease, it can take a toll. Says one medical specialist, "Losing kidney function affects how your hair grows to how your toenails grow and everything in between." Another, a nurse working in a dialysis clinic, states: "We look at people and know their lives will never be the same again."
It took Jeff some time to absorb the
importance of what he was being told. The
news came as a shock and left him feeling
helpless. Like many people in his situation,
he asked the obvious questions: How could
this happen to me? Why has my body
betrayed me?
Within days, however, Jeff regained
his composure. Kidney disease was just
another thing to deal with, and Jeff resolved
to deal with it.
The Black Sheep
Jeff Skinner is, in a manner of speaking,
the black sheep of his family.
These are, after all, the Skinners of hot
dog and hockey fame. Jeff's grandfather,
Jim Skinner, Sr., not only founded the first
Skinner's drive-in at Lockport in 1929, but
also helped establish the Manitoba Junior
Hockey League. And, as owner of the Selkirk
Arena, he was instrumental in developing
the Selkirk Steelers senior hockey club
as the farm team for the Detroit Red Wings.
Jim had three sons, Jim Jr., Gordon, and
Morden (Ducky). Jim Jr., perhaps the best
known, held various positions with the Red
Wings for 30 years, including coaching the
team to the Stanley Cup in the 50s. He and
"Ducky," also a professional hockey player,
are in various Hockey Halls of Fame. Jeff's
father, Gordon, ran the family business
until it was sold in 1973.
Gordon and Evelyn had two sons: David
was born in 1947 and Jeff was born eight
years later, in 1955. Both boys grew up
working long hours in the family business,
but as they matured, each chose careers far
removed from the food and beverage industry.
David planned to be a lawyer, while Jeff
had developed a talent and passion for the
creative arts.
"Dad offered the business to us," says
Jeff, "and I couldn't have asked for a better
education. I learned money and people
skills. But my life is all about what I do and
I knew I wanted something different."
Instead of hockey, Jeff Skinner played piano;
instead of golf, his passion was voice
and trumpet. From grade school through
university, Jeff studied with some of Winnipeg's
finest music teachers. And it paid
off: his raw talent has been honed into an
impressive instrument. From starring in high
school musicals to performing at Rainbow
Stage to singing at numerous public events,
Jeff has over the years appeared in 50 musical
and theatrical productions and in over
500 musical stage appearances, along with
about 40 roles in TV shows and movies.
In the 1970s, there was, of course, the
requisite pilgrimage to Toronto to "make
it big." He had a few minor stage successes,
but overall, "I found I couldn't
wait by the phone for it to ring. I wanted
to create my own work."
Returning to Winnipeg, he began a career
in marketing - first with Stage West
and then with the Winnipeg Sun.
From 1982 to 1987, he and three
friends formed the Argyles, a show
band that had a strong local following,
performing at the Rorie Street Marble
Club, the Norwood Hotel, and at various
events. The group's success expanded as
Entertainment Ambassadors for Expo '86
in Vancouver - opening for big acts like
the Neville Brothers and Tower of Power,
and sharing the stage with the Nylons.
Eventually, though, Jeff left the group
and evolved into an events planner.
Through his own company, Theatricom,
he served as Festival Co-ordinator for
the 1991 Grey Cup, and created and
produced the Festival of Lights Parade for
the 1998 Grey Cup. In 1998, he joined
the team at The Forks where he worked
for seven years. "We did 200 events
a year," he recalls. "I created Dancing
Under the Canopy and the original
Christmas at The Forks."
And on top of all that, there was community
involvement.
"My family believed in community
service," he says. "And that's why I
volunteered to be the Marketing Chair
for the United Way Fundraising Campaign
for five years and Vice-President
of the Rainbow Society. I also sit on the
board of the Burton Cummings Theatre.
At three points in my life, I had to pull
out because I was spending up to 80 per
cent of my time in volunteer work."
What's remarkable about Jeff is not
only his prodigious work history, but
also the fact that, alongside his public
accomplishments, he was battling many
a private health crisis.
His mother, Evelyn Skinner, with
whom he shares the family home, suffers
greatly because of Jeff's medical history.
"I keep thinking, 'What did I do wrong?'
I had one kid who's always been healthy
and one who has been falling apart."
Evelyn says her son's health problems
started at the age of one. "I saw one leg
longer than the other. His pediatrician
always questioned if it was polio. He
had a terrible fever and was in hospital
for several weeks. It was a terrible time,"
she recalls.
The next blow came when Jeff was 21. After a few years working at minimum-wage jobs, he was deeply immersed in theatre studies at the University of Winnipeg.
"Suddenly, I began to have severe headaches," says Jeff. "I didn't sleep for a month. My family was helpless." It was eventually determined that Jeff had an aneurysm in his brain and had to undergo surgery to remove it.
Nine years later, at age 30, Jeff was diagnosed with testicular cancer. He underwent surgery and radiation for seven weeks, and the cancer disappeared.
Another decade, another crisis. In 1997,
at 42, Jeff had the first of several operations
to repair multiple aneurysms in his left leg.
He has an arteriovenous malformation, a
condition described as an abnormal connection
between the arteries and veins. It's
a lifelong condition, which means Jeff will
face more procedures as he ages.
Despite everything, Jeff is able to put a
positive spin on these experiences: "There
is an upside to all this. Every time you go
through a medical crisis, you learn more
about yourself."
Still, nothing prepared Jeff for chronic
kidney disease. "Everything else I had
could be fixed. This can't."
Not that he didn't try.
The Journey Begins
Chronic kidney disease can be a very
slow-developing condition. At the time of
his diagnosis, Jeff was not required to do
anything. But his doctor told him what to
expect: over time, his kidneys would start
to fail and he would eventually need dialysis
and a kidney transplant.
Doctors couldn't tell Jeff precisely when
all this would happen as even a family history
of polycystic kidneys was absent. This
condition which is very often transmitted
genetically, can have a relative predictive
pattern of disease progression. Without a
reference point, Jeff was entering unfamiliar
medical terrain.
Nonetheless, and despite past medical
problems, Jeff believed he was basically
pretty healthy. He was a non-smoker, rarely
drank, and was careful to take vitamins
daily. In short, he hoped his generally
healthy lifestyle would slow down the deterioration
of his kidneys, maybe even halt it
altogether.
Once the diagnosis was in, Jeff started
attending the renal clinic at Health Sciences
Centre where his condition could be
monitored. As expected, the disease gained
ground as the years went by. But even as his creatinine levels started to rise (creatinine
levels measure the kidneys' ability
to excrete waste), Jeff got on with his life.
"When you are self-employed, what choice
do you have? You just get on with life," he
says.
In 2003, renting studio space on Albert
Street, Jeff went out on a long entrepreneurial
limb and opened the Actors' Training
Centre of Manitoba, where he hoped to
develop a pool of film actors who could
plug into the local movie industry. A few
years later, he ran into Kent Ulrich, who
was in the business of financing films. The
two men formed a partnership called Two
Lagoons Entertainment Inc.
Jeff threw himself into the project with
his new partner, working long days reading
scripts, teaching, and producing feature
films. They even built a western movie set
on a parcel of land near Tyndall. At the
same time, however, he was entering a
different phase of his illness. His body was
starting to shut down. "I couldn't walk four
steps, my lungs were full of fluid, and I had
severe sleep apnea," he says.
It was now clear that dialysis would be
needed if Jeff was to stay alive, but even so,
he resisted. Dialysis treatment can be psychologically
intimidating for people with
chronic kidney disease, in part because it
signals that the patient is in end-stage renal
failure. That is to say, their kidneys are no
longer functioning at an acceptable level
and they need the help of a machine to
clean their blood.
"No one wants tubes hanging out of their
stomach," Jeff says, trying to explain his
reluctance. "So you try to hold off. But I
knew I was miserable not on dialysis."
By June 2008, Jeff was ready to take the
next step on his journey and begin dialysis
treatment. The only question was whether
he would undergo hemodialysis or peritoneal
dialysis.
The former involves having a patient
attend one of the city's four dialysis units,
which are operated by the Manitoba Renal
Program and funded by the Winnipeg
Health Region. Once there, the patient is
hooked up to a machine that cleans his or
her blood outside the body.
Peritoneal dialysis, meanwhile, is a less
invasive process in which blood is cleaned
by placing a catheter tube in the patient's
abdomen, which is then used to insert
dialysis solution. The solution draws the
toxins from the blood and is then drained
out of the body.
Jeff chose peritoneal dialysis because it allowed him to carry out the treatments at home, something that he
thought would allow him greater freedom. Because it is a self-administered
program, there is a one to two-week training program to learn all
the intricacies of the process. Jeff picked up the skills in five days.
Living with Kidney Disease
It's a drizzly day in mid-August 2009 and Evelyn Skinner is sitting in
her living room, which is decorated in her favourite colours of soft blues
and peach. The Skinners have lived in this comfortable 1-1/2-storey
home in Silver Heights since it was built in 1952. The family has strong
roots in this small, tight-knit community. This is where, from birth, Jeff
grew up, went to school and formed lifelong friendships.
For years, after he graduated from university, Jeff lived away from
home, but on his deathbed, his father asked that he come back to share
the family home with his mother. And he did, purchasing the family
home so that his mother could continue living where she was most
comfortable. They have an ideal set-up. Evelyn Skinner has her own self-contained
apartment upstairs; Jeff lives in the lower portion of the house.
The living arrangements work well.
Evelyn, perhaps more than anyone else, understands what Jeff has
been going through all these years as he struggles to overcome kidney
disease. She was here when he came home with the diagnosis, and she
was here when the dialysis equipment arrived 10 years later in 2008.
She says her son has had difficulty coming to terms with dialysis.
"Normally Jeff is a kind and obliging person," says Evelyn, "but since
he's been on dialysis, it's all changed. Every day, I can hear him swearing
at the dialysis machine. He is angry - very verbal - very loud - at
the least little thing," she says.
Jeff acknowledges that his relationship with the dialysis machine is
a complicated one. "As soon as I was on dialysis, I felt better," he says.
Nonetheless, he admits that he does lose his cool on occasion. "I do it
here (get angry) because I can't release (my frustration) around anyone
else. I tell her (my mother) not to take it personally," he says. He says
socializing, and more importantly - teaching - is difficult. "What energy
am I putting out? How am I affecting others? How am I controlling my
manners?"
He says his anger comes from feelings of isolation. "I feel like the kid
standing on the outside looking in," he explains. "The last two years of
my life should have been the most exciting with our movie company,
but I've had to stay in the background and watch others play. I had to
fire myself more than once because I was incapable of doing the work.
Thank goodness for Kent; he kept everything going."
Verrelli says Jeff is not alone in his feelings about dialysis. "Most
patients have to come to terms with the fact that this transition is unfortunately necessary, and getting over the hump is often very difficult for patients," he says. "But when a patient eventually starts dialysis and feels
much better, he or she then understands how sick they really were."
In order to dialyze at home, Jeff had to make some changes to the
house. On this visit, one can see that a main-floor guest room has been
converted into a medical storage area. Heavy cardboard boxes - 60
delivered each month - are stacked floor to ceiling. Each box contains
heavy five-litre plastic bags of a fluid called dialysate. Under the
window, more medical supplies are neatly arranged on a long white
rectangular table: bandages, a bag of heparin capsules, a blood pressure
cuff and monitor, a gallon of distilled water and saline cleanser, and a
bag of syringes. Other boxes contain lengths of clear plastic tubing.
Next door, on an oversized table next to his bed, sits a large white
machine, known as a cycler. It looks very much like an oversized infant
scale. The bags of dialysate are kept warm on the top of the machine,
which automatically controls how much fluid flows through the tubes
into Jeff's lower abdomen. The waste fluid is then drained by another
length of tube into the toilet about 20 feet away. Jeff undergoes dialysis
overnight. The equipment takes at least 1/2 hour to hook up in the
evening and another 1/2 hour to take apart in the morning. All products
used are thrown away daily. "One of my biggest costs is in garbage
bags," says Jeff.
Simply viewing the equipment and supplies is exhausting; a life
dependent on it is overwhelming. "Man, oh man - it's amazing what
those little 10 cm things called kidneys can do, when you consider what
I have to do to create a poor facsimile," he says.
Visiting the Clinic
Decked out in a red T-shirt, sunglasses perched on his head, Jeff Skinner
looks bright and chipper as he makes his way to the dialysis clinic at
Seven Oaks General Hospital on this late August day.
Located behind the hospital's Emergency entrance, the clinic is a lowlying
oasis of pleasing red brick and landscaped grounds. It's obviously
been designed to meet human needs, from the ample, inexpensive parking
nearby to the restful décor inside.
Jeff has now been dialyzing at home for more than a year, but he still
must make the trek to a renal clinic for a monthly checkup, just to make
sure things are as they should be. He picked this clinic for his visits because
of Dr. Sean Armstrong, his nephrologist and the Medical Director
of the Seven Oaks Renal Program.
Jeff first met Armstrong at the St. Boniface renal clinic when he was
struggling with the whole idea of dialysis. He felt an immediate connection
with the tall, good-humoured kidney specialist. What he appreciated
most was that Armstrong didn't try to force him into a decision.
"He has respect for the patient," Skinner says. "He knows where we are
emotionally."
When Armstrong moved over to Seven
Oaks, Jeff quickly followed.
Interestingly, Jeff looks forward to these
visits, his quick wit and people skills on full
display. The staff reciprocates with equally
warm quips and comments.
"Hey, Jeff! Any new projects you can tell
us about?" calls out one staffer. "Still making
movies?"
The feeling of relaxed bonhomie extends
into the examination room where all
conversations concentrate on a printout of
Skinner's blood work and blood pressure
numbers.
Dialysis doesn't take away the problems
of chronic kidney disease, it holds them at
bay. Monitoring a patient with kidney disease
is a meticulous process. Each element
in the body - creatinine, sodium, calcium,
potassium, phosphate, cholesterol, hemoglobin,
urea reduction ratio - is carefully
calculated to measure how the kidneys are
working and if dialysis is flushing enough
toxins from the system. The work is carried
out by a team of specialists: One after
another, first a nurse, then a dietitian, then
a pharmacist, then the doctor, they go over
every detail of Skinner's monthly tests.
To keep his body in balance, Jeff takes
daily medications and vitamins; he's also
supposed to adhere to a phosphate-free
diet as well as limit his fluid intake to one
litre a day. He attempts to follow the food
and fluid regimen, but it's tough.
Despite his calm exterior, he's always
concerned about what the blood work
shows: "Sometimes I feel as though I got
sick because I failed. If my blood work
numbers are off, I have failed."
He's hesitant to share these feelings with
the medical team. And he remembers his
feeling of complete elation a couple of
months ago when Armstrong told him, "You know what? You're still the healthiest
person in my practice."
Today, after all observations have been
carefully notated in a five-inch-thick dark
green binder, labelled "Jeff Skinner" - Armstrong
enters the room to review the whole
picture. The discussion is serious: Jeff has
already increased his dialysis up to fourteen
hours a day and still his body is a mass of
symptoms. He complains, especially about
the numbness in his hands, the sensitivity
of nerve endings throughout his body,
which feels like a million needles, his restless
leg syndrome at night, flaky skin, sores
that don't heal, and burst blood vessels
that turn his eyes into a vision of hot pink
and red. He's still fatigued, has shortness of
breath and has developed a cough.
It's obvious that peritoneal dialysis isn't
going to be a long-term solution. Armstrong
looks at the creatinine levels and confirms
what Jeff already knows: He is on the brink
of needing to undergo hemodialysis, which
some patients require when their residual
kidney function drops to almost nothing.
Fortunately, Jeff is also on the brink of
something else: receiving a kidney from a
live donor. It's just a matter of arranging a
date for the transplant operation.
Armstrong, with true emotion, says, "I'm
glad you're getting a transplant." And as
he leaves the room, he tells Jeff that he is
going to call the Health Sciences Centre "to
see if we can push things along."
Time for a Transplant
Jeff Skinner is doubly blessed. Not only
is he eligible for a kidney transplant, he's
actually had offers from five live donors
over the last 18 months. The first to step up
was his brother, David, followed by good
friend, local artist and Renaissance man,
Nicholas Burns. Initially, Burns appeared to
be a better match for Jeff, so he became the
first candidate.
Previously, Burns had learned of a
woman in Vancouver who had recovered nicely after donating a kidney, and because
of deep personal reasons, felt that was
something he would like to do. "So, when
Jeff first told me of his kidney problems,
I told him I wouldn't have any problem
being a donor," says Burns. And once the
decision was made, Burns began the live
donor evaluation process.
Of course, donating an organ is not
as simple as putting up your hand and
volunteering. First, the potential donor has
to go through a screening interview with a
transplant co-ordinator, which leads to an
information session with a transplant nephrologist.
Next, there is a series of blood
and tissue tests to check if the potential
donor and recipient are compatible. If
all matches up, the potential donor starts
undergoing a never-ending series of blood
tests and X-rays to rule out possible health
risks, now and in the future. A psychiatrist
is also involved to make sure the potential
donor is giving for all the right reasons.
At the Health Sciences Centre, all the
details of the process - right up to the moment
of surgery - are taken care of by one
of several renal transplant co-ordinators.
It's a job that requires meticulous organization
and supreme tact. Co-ordinators not
only juggle a plethora of appointments and
test results from both donor
candidate and recipient,
they also have to maintain
a fine ethical balance that
protects both the potential
donor and the recipient.
In other words,
the co-ordinator can't
share any information
from one with the other.
Even though some patients may feel
constrained by the high level of secrecy -
the rules are in place for a reason. Donating
a kidney is a monumental decision; full
privacy means the potential donor can pull
out at any time without feelings of guilt or
recrimination. (Donors themselves can obviously
share as much information as they
want with recipients.)
Jeff's file was handled by transplant coordinator
Jody Sawatzky. Despite working
with live donors every day, Sawatzky says
she still is awed by their generosity. "Donors
make magic. I admire them so much,"
she says. "Their commitment has to be
strong and enduring."
The donor evaluation process for Burns
started well. Blood and tissue typing went
better than expected. Burns got a "thumbs
up" - he and Jeff were almost a perfect
match. However, six months into the
process - in October of 2008 - further tests
showed Burns had an anomaly of veins
on one side and a lobed kidney on the
other. He was out of the running. "I told
Jeff about it in person. I was very disappointed,
crushed really. It was really tough
to tell him, but Jeff being Jeff, tried to ease
the loss."
Jeff's brother, David, then 61 years old,
would become the next candidate.
David Skinner Steps Up
On a windy, cool day in early October
2009, David Skinner greets this visitor in
the hushed reception area of Taylor Mc-
Caffrey law offices, nine storeys above the
corner of St. Mary Avenue and Kennedy
Street. We walk up a few flights more to his
office, which offers a panoramic view of
downtown rooftops. David has a busy law
practice, but he says his work is flexible,
which has given him the time to be a live
kidney donor.
In just seven weeks - on Thursday, Nov.
26 to be precise - David will undergo surgery
to have his left kidney removed to be
transplanted into his brother, Jeff.
David does not appear at all anxious
about the upcoming operation, even
though, according to his mother, he hasn't
had a brush with anything surgical since he
had his appendix out 35 years ago.
Like Nicholas Burns before him, David
has undergone the battery of tests that
every potential live kidney donor must
endure. "I've just been going through the
process," he says nonchalantly, before adding
ruefully, "They have taken more blood
than I thought I had blood."
He says he appreciated the privacy allowed
the donor. "The live donor ultimately
calls the shots on how to proceed, and if
at any time the donor wants to quit, it's his
call," he says. "It relieves a lot of pressure
for the donor - there is not as much pressure
to carry on if circumstances change."
He has also been reading up about
other live donors and feels confident of
the outcome. "I'm not overly concerned.
Transplants have become common procedure.
In fact, I've already booked my winter
holidays."
Not a demonstrative man, he comments
on how Jeff has slowed down, how he's
more subdued, how he attempts to put
on a brave front. He notes that because of the eight-year age gap, he and Jeff have
not been as close as other brothers, but
through this process, they are beginning to
joke around a bit more.
David's cool demeanour belies the
remarkably selfless act he is about to perform.
Jeff, as a recipient, expresses deeper,
more personal sentiments.
He believes it is "the deepest act of
love." He suggests there should be a ritual
attached to the process - perhaps an exchange
of letters between brothers. As time
passes, however, he realizes that while
there will now be a deeper connection
with his brother, emotions will not be expressed
openly. That's just not David's style.
Meeting the Surgeon
By the first week of November 2009, Jeff
and David are beginning to tick off their
pre-surgery appointments. Today, they are
meeting Dr. Josh Koulack, the surgeon who
performs most of the kidney transplants in
the province.
As arranged, Jeff and David meet at the
yellow desk on the main floor of Health
Sciences Centre, their attire as much a
study in contrasts as their personalities.
David is the more formal of the two,
wearing a black shirt, jacket and trousers.
Jeff, meanwhile, is wearing a green T-Shirt
under a black fleece jacket. A nurse leads
them to a small, bright clinic room where
they await the surgeon.
The meeting with Koulack is brief, considering
the importance of the procedure.
After reviewing medical histories, Koulack
first explains how he will remove the kidney,
artery, vein and ureter from David's left
side. Because of a stent implanted in Jeff's
left leg, he will place the new organ on the
right side of Jeff's abdomen.
The tricky part is attaching the ureter to the recipient's bladder: "We have to go through a muscle and because that can cause a clot, to be preventive, we put in a stent - like a little tunnel - from the new kidney to the bladder," explains Koulack. "Six weeks later, we remove the stent."
Surprisingly, as they sign the consent forms, David and Jeff have few questions. Later, walking out, David remarks dryly on Koulack's youthful appearance. "Do you think he is really old enough to do the surgery?" Joking aside, both men have full confidence in this surgeon. After all, he does up to 40 transplants a year. And, truth be told, at this stage the brothers just want to get on with it. (David's sense of humour never disappears: A few days later, during the day-long pre-admissions clinic, he remarks: "You know, ever since I saw Dr. Koulack, my left kidney has been hurting.")
It's Show Time
On Wednesday, Nov. 25, 2009, Jeff Skinner, his dialysis equipment loaded into a wheelchair, checks into the Health Sciences Centre and enters a room on ward GD-4, which he will share with his brother.
Dr. David Rush, a nephrologist and Medical Director of Transplant Manitoba, Adult Kidney Program, greets him warmly. "Soon you'll be in a pretty blue gown - and then I will check you over," says Rush. "And as luck would have it, I'm on call and will be your doctor this weekend," he adds.
The next day, on Nov. 26, David is admitted early in the morning, a couple of hours before surgery.
By all accounts, surgery on both donor and recipient went well. David had a remarkable recovery. He was up and about two days later and discharged on the third. Jeff, however, had a serious setback.
On the Saturday night following surgery, at 11 p.m., the new kidney shut down. Under the direction of Rush - who came in at 5 a.m. Sunday - Jeff was put through a barrage of tests and procedures, from irrigation to ultrasound to CT scans. There was even talk of removing the kidney. No one knew what had happened. Then - just as mysteriously - at 1 p.m. Sunday, the kidney started to flow by itself. A week later, he was allowed to go home.
Back to Work
Today, almost four months after surgery, David is doing well. He's back at work, revitalized from that long-awaited winter vacation. Jeff is also doing well, as evidenced by his desire to bring the best out of his students on this January evening.
But even as his charges run through their scripts one more time, Jeff knows his own story is not yet complete. He's still being monitored twice a week at the transplant clinic, and he's still adjusting to the daily regimen of anti-rejection drugs that he will take every 12 hours for the rest of his life.
Taking a moment to reflect on his journey, Jeff wastes few words on himself. Instead, he lavishes praise on the "phenomenal" medical team of doctors, nurses, and unit assistants that cared for him during his 13-day hospital stay. "I was trapped in my bed; I was at their mercy; yet they made me feel empowered," he says. "They allowed me a sense of control. I felt as though we were working together to get me better."
His praise extends to his present care at the transplant clinic where already everyone knows him by name. "It's all about helping me manage with respect and dignity," he says. "This is, after all, a lifelong relationship."
Dolores Haggarty is a Winnipeg writer.

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